Parents agree to hospice care for Charlie Gard

On Monday, Charlie's parents, Chris Gard and Connie Yates, announced they are ending their lengthy court battle over treatment for their son.

Both parents wept in the packed courtroom at the High Court in London as lawyer Grant Armstrong made the announcement, his voice breaking.

"For Charlie, it's too late, time has run out".

Armstrong also said that contrary to the hospital's claims, it had actually put up "obstacle after obstacle" to bringing Charlie home.

"We are about to do the hardest thing we will ever have to do, which is to let our handsome little Charlie go", Chris Gard said Monday.

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Then [the hospital] successfully thwarted the attempts of Connie Yates and Chris Gard to have Charlie transferred to an American hospital to undergo experimental nucleoside therapy to address his exceptionally rare and debilitating chromosomal condition - encephalomyopathic mitochondrial DNA depletion syndrome (MDDS) - in which his cells can not replenish essential energy. But she said practicalities were of the "greatest importance" and that Charlie's parents had proposed no clear plan. They have sought permission from the courts to switch off his life support and allow him to die peacefully. His parents accept that his condition has deteriorated to the point where the experimental treatment would not work. His parents wanted to take him to the USA for nucleoside therapy.

As the parents beg the court to allow their baby to die in their home and appreciate last precious moments with him, Christians should be before the courts of heaven on behalf of this child!

The fact is, the chance for any hope at all was quashed by the United Kingdom courts that barred Charlie's parents from pursuing treatment for their son, something that seemed to elude ABC. "Many of these messages are menacing, including death threats", the hospital said in a statement.

Mr Armstrong suggested to the judge that hospital bosses were placing obstacles in Charlie's parents' way.

The situation surrounding Charlie's fate has drawn considerable global attention and passionate support for the parents' wish to seek further treatment outside the public health system.

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The judge this week condemned social-media commentators who discuss the case without knowing the facts.

"Recognise that children do not belong to their parents", said Kennedy. Presiding judge Nicholas Francis said emotions are high in this case. But the judge ruled that the hospice's location and the date of transfer would remain private by court order. The case returned to court this month when the hospital asked the judge to reassess the possible benefits of a treatment pioneered by Dr. Michio Hirano, a neurology expert from Columbia Medical Center in NY.

Hirano believes there is at least a 10 percent chance his nucleoside therapy could improve the condition of Charlie, who cannot breathe without a ventilator, and that there is a "small but significant" chance it would help aid brain functions. Particular caution will be required in cases where the patient, the family and the clinical team are at odds, or where there is uncertainty about other available treatments. They told the court they wanted "a few days of tranquillity outside the hospital before Charlie passes away". Even then, as MRC reported, when a judge revisited Charlie's case, the networks spent more time on a picture of Beyoncé's twins than on the British infant.

Congressional Republicans sought to pass legislation that would give the Gard family US residency and a potential route to treatment there, although it wasn't not clear whether that would ultimately have enabled them to obviate a British court decision.

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